Name: Nat Honey Email: nathoneym@hotmail.com Age at time of Dissection: 14 Type of Dissection: Both Ascending and Descending Date of Aortic Dissection: 4 August 2016 Tell Us Your Story: My 14 year old daughter died from a ruptured thoracic aorta 2 weeks ago. She had always been relatively healthy, sporty and fit. She had chest […]
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Name: Nat Honey
Email: nathoneym@hotmail.com
Age at time of Dissection: 14
Type of Dissection: Both Ascending and Descending
Date of Aortic Dissection: 4 August 2016
Tell Us Your Story:
My 14 year old daughter died from a ruptured thoracic aorta 2 weeks ago. She had always been relatively healthy, sporty and fit. She had chest pains and nausea suddenly on 4th August, on a regular evening when hanging out at home. I decided quickly to take her to the emergency department at the hospital. An incredible Irish ER doctor, through tenacity and experience was eventually able to identify the problem. She was rushed into emergency surgery.
8 hours later they had replaced her aortic valve and a large part of her ascending aorta. We anxiously waited for her to wake. She was ok. 10 days in hospital, then sent home. We were given specialist appointments to follow up – she had been almost certainly diagnosed with Marfans. Her aorta was badly dissected all the way down to her abdomen, and badly dilated in the thoracic region. We were given a date for more open heart surgery – 2 weeks after she’d left hospital. It would involve a vascular surgeon also.
Massive surgery. She never made it to the surgery – booked for the 9th September. Instead that was the day of her funeral. She died suddenly one day from a massive rupture, it was exactly what I was afraid of. Her case is now the subject of a colonial investigation. Her father, siblings and I are now grieving the loss of our beautiful girl, gone within 4 weeks of her first symptoms. Devastating.
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