Name: Barbara Vaughan
Age at time of Dissection: 65
Type of Dissection: Ascending
Date of Aortic Dissection: 10 October 2012
Tell Us Your Story:
I am a Marfan patient who has been monitored and treated with BP meds for about 20 years. My aortic root was at 4.7 cm prior to dissection. My dissection extended from the aortic valve, all the way to the iliac arteries.
I survived the flight for life ride and a nine hour surgery. My surgeon described my tissues as like sewing butter. After almost 3 years a CT scan shows no change in the aortic dissection, no aneurysm, however it also found a small tear beginning in my pulmonary artery. This usually indicates high BP in that vessel.
Doctor are reluctant to confirm the high BP with a Heart cath for fear of tearing the artery further. It appears that this condition is very rare even among Marfan’s patients. Do you know of any treatment options? We live moment by moment and do our best to enjoy each one.
This site is a great find for us. Thanks