Name: Rosie Raymer
Age at time of Dissection: 78
Type of Dissection: Ascending
Date of Aortic Dissection: 18 March 2014
Tell Us Your Story:
One day in March 2014, my 78 year old mom was experiencing excruciating chest pain. She barely managed to call my sister and an ambulance was called. She was taken to the hospital. A CT scan was done and the Type A Ascending AD was missed. She was discharged once they confirmed there was no heart attack. Two weeks later, she had excruciating back pain in the middle of the night. She managed to call the ambulance herself and went to the same hospital. Again a CT scan was taken, the AD missed and she was discharged on the basis of no heart attack. My brother in law went to pick her up and alerted the staff that her left side was not moving. She was having a massive stroke. She was quickly rushed to a neuro hospital and given blood thinner.
My brother in law told the doctor there that she had experienced bad chest and back pain. The earlier CT scans were reviewed and the AD was finally noted. Blood thinners were quickly ceased and she was rushed to cardiac hospital. Given that she was given blood thinners, surgery was not an option. She flat lined twice that night then stabilized. She is completely paralyzed on the left side though her speech and mind are good. It has now been 6 weeks since the stroke occurred, She is waiting for a bed in a neuro rehab hospital.
The cardiac surgeon reran a CY scan and her aorta has increased to 4.6cm from 4.4cm on date of admission. Another CT scan will be run in 3 to 4 months. They do not want to do surgery now because her recovery will be difficult as she is very limited in mobility. The plan is to see how strong she can get from rehab, see how the aorta is doing and revisit the surgery option. We are devastated that the initial hospital missed this twice but realize we have to focus on recovery and the situation at hand for now. Has anyone experienced similar situation of Type A Ascending AD combined with a massive right hemi stroke?
I am interested in the recovery,if surgery was eventually performed and how rehab was modified to take into account the AD. I am worried that the AD will be exacerbated with the physical effort she will need to exert to stand on her own, walk etc. She is very feisty and a fighter so she will push herself. Thank you so much for this website. It has been very helpful.