Tom Mohr-51

Name: Tom mohr
Age at time of Dissection: 51
Type of Dissection: Both Ascending and Descending
Date of Aortic Dissection: 19 July 2012
Tell Us Your Story:

Thoracic aortic dissection type a.
Replaced aortic valve with a pig valve.
10 hour surgery rebuilt the ascending aorta and strengthen the 3 veins to the brain.Damage to the nerves on my spine due to lack of oxygen during the dissection. Nerve damage all the way down both sides of my legs. Like thousands of needles being stuck on my legs.

Some days it feels like someone is holding me back as I walk, usually on my left side.
I take 13 medications. For blood pressure and I take gabapentin to dull the pain on my legs and I take one tramadol 50mg. Every 6 hours to keep the pain in Check.
I was very blessed by God to make it..I received my last rights. Because it turned into one large an your ism.
I have short term memory loss and I cannot make it , only about a half day at work. Before my body starts to shut down.its been 18 months

I’m know 53, and struggling with the idea of Applying for disability. I can walk 3 to 5 miles a day. But I can’t sit for more than a half hour before my legs really start to hurt. Also after speaking for 15 minuts straight. I’m done for the day.tired dizzy no energy.

I was a successful executive and know here’s the new me.
But I can’t get anyone to answer, does the government approve thoracic aortic dissection survivors, with pig valves and neurological nerve damage ???? Before I spend weeks filling out paperwork


Gene variant raises risk for aortic tear and rupture


Kev Heywood-50


  1. survivor of 1 ascending —-1 descending aneurism both class b inoperable so they have perscribed—- forosemine 20 mgms each a.m. potassium chloride 8 meq every other day,toloxin 0.125mgmsin a.m. amlodopine 5mgms at h.s.labetolol 400 mgms at h.s. Blood pressure fluctuates 150/77———130/90.any suggestions to better control b.p?

  2. Amber Dulyanai

    Hi Tom 🙂
    Glad your your still here:) I too have been thinking of disability.
    I am in chronic pain as well. All the people on the site have such
    great success stories. I felt alone in this. Thank you for posting.
    Please keep me posted on your journey.
    Thank You
    Amber Dulyanai

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